rare
One Breath at a Time: The Burden of Living with a Rare Respiratory Disease
(BPT) – People suffering from rare diseases can often have challenges coping with their illnesses. For those affected by a chronic respiratory disease known as Non-Cystic Fibrosis Bronchiectasis (NCFB), repeated infections and flare ups can make disease management a challenge. NCFB is characterized by symptoms including cough, breathlessness and repeated infections caused by mucus pools […]
Advocate for your care: Recognizing and tracking symptoms of a rare blood cancer
Sorry, but your browser does not support the video tag. (BPT) – Living with a rare disease can present a unique set of challenges, as people may experience symptoms for years before receiving an accurate diagnosis. Once diagnosed, it may be challenging to locate a physician familiar with this rare disease, or to even connect […]
After years of ER visits and overlooked symptoms, a rare cancer diagnosis emerges
(BPT) – Giovanna was a successful composer and pianist playing alongside some of the biggest names in the music industry when she experienced bouts of abdominal pain so intense she made repeated visits to the emergency room (ER). Over the next several years, Giovanna found herself in the ER at least six times, always with […]